The Lupus Research Institute (LRI) is the world’s leading private supporter of innovative research in lupus and a strong advocate for federal support of lupus research among members of Congress, health groups, the pharmaceutical industry, and the public. The LRI’s advocacy arm is its National Coalition, a powerful network of state and local lupus organizations united to prevent, treat and cure lupus by advocating for lupus on Capitol Hill. The LRI advocates for lasting change in numerous ways. We need people with lupus and those impacted by lupus to let their voice be heard in order to improve access to care for people with lupus and other debilitating chronic illnesses.

This webinar, the first of a three part series, will cover advocacy basics such as how Congress works, how a bill becomes a law, the budget and appropriations process, and how to work with members of Congress. The information presented in this webinar will help you on the way to becoming an effective advocate and will let you know how you can work with the LRI and National Coalition members to strengthen the voice of people with lupus.


Objectives:

  • To understand at what stages in the process it is important to be involved
  • To learn how to communicate with and engage members of Congress
  • To understand how to look up and track the progress of a bill


Who Should Attend:
  • People interested in becoming advocates for access to care issues
  • Seasoned advocates who need a refresher

Disclaimer:

This webinar is for educational and informational purposes. The information provided here should not be used for the purposes of diagnosing or treating a medical illness. It is not intended to be a substitute for professional care. Lupus is a very individualized illness; consult with a healthcare professional, in-person, before making any decisions about your care. The Lupus Research Institute and S.L.E. Lupus Foundation employees, consultants, and agents shall not be liable for any claims or damages, and expressly disclaim all liability of any nature for any action or non-action taken as a result of the information generated by sponsored programs.
Seminar Information
Date Presented:
December 04, 2013 2:00 PM Eastern
Length:
1 hour
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Addressing Access to Care: Understanding Federal and State Issues - Part 1: A Basic Guide for Advocates
Brent Jaquet has expertise in science and research across federal agencies, education, healthcare, patient and professional advocacy, and health programs in the Department of Defense. Brent served as senior appropriations aide to Congressman C. W. Bill Young of Florida for seven years. Prior to this, Brent was a senior official at the National Institutes of Health (NIH), where he managed communications, science transfer, professional health education, and legislative liaison activities. He also developed communications programs in health planning, professions and facilities at the Department of Health and Human Services. He is a member of the Health Sciences Policy Liaisons of the Institute of Medicine and the Civilian Advisory Committee of the congressional-chartered Henry M. Jackson Foundation’s Center for Public-Private Partnership. He earned his B.A. in Political Science from Belmont Abbey College in North Carolina and attended graduate studies in communications at the University of Maryland, College of Journalism following service in the U.S. Navy as a journalist.

Kathryn G. Schubert combines her experience on Capitol Hill and expertise in health policy to work with clients to prioritize their public policy goals and develop policy recommendations and legislative language to advance their objectives. From specialty medical societies to patient advocacy organizations and biotech companies, she has successfully helped organizations navigate the implementation of federal laws, including the Affordable Care Act and the Medicare Improvements for Patients and Providers Act. She monitors and analyzes issues ranging from reimbursement policy to federal biomedical research and public health programs, and also works at the federal regulatory level to influence policy decisions that affect organizations and their constituencies. Katie has served in key staff roles in the U.S. House of Representatives, working with Congresswoman Nancy Johnson of Connecticut and as legislative director for Congressman Wayne T. Gilchrest of Maryland.  Katie earned a B.A. in Political Science from Mary Washington College in Fredericksburg, Virginia and a Master of Public Policy degree with a concentration in health policy from The George Washington University.

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